Patients
Welcome to the Patients' Corner at BE.Amycon! This space is dedicated to providing valuable insights, support, and information for individuals and families affected by amyloidosis. As we work on developing this section further, our aim is to equip you with resources, knowledge about the condition, and avenues for seeking help.
Please bear with us as we curate content specifically tailored to your needs. Whether you're looking for guidance, seeking to connect with others who understand your journey, or searching for the latest developments in amyloidosis, stay tuned for updates and information relevant to you.
AmyBel - Belgian Amyloidosis Patient Association
The Belgian Amyloidosis Patient Association (AmyBel) is an organization for and by patients and their loved ones. The association was founded in January 2024, when 3 patients suffering from different forms of systemic amyloidosis joined forces.
The goals of AmyBel are:
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Providing information to patients.
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Encouraging contacts between patients, family members and healthcare providers.
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Organizing and attending meetings and conferences.
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Establishing contacts with other patient associations in Belgium and other countries.
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Promoting and supporting scientific research.